My name is Gery and I am a registered nurse in Canberra Australia, caring for Oncology/Haematology patients undergoing cancer treatment with CAR T Cell therapy and bi specific antibody therapy.
I regularly document Cytokine release syndrome (CRS) and I am quite interested in developing an openEHR template that would capture instances of CRS, and structure it in a way that would be useful for clinicians (nurses, doctors, emergency department staff, community nurses) to pick up on possible patient episodes of CRS, and to inform them on what steps to take if a suspected episode is occurring.
Any input or directions is greatly appreciated
Kind regards
Gery
I’m not sure I understand your use case completely. Do you want to be able to document an identified episode of CRS, or document symptoms or signs in order to predict an episode before it happens? Or both, or something else entirely?
CRS is an adverse event that occurs after the infusion of specific drugs that is used to treat certain types of cancer.
So technically, I would like to be able to document episodes CRS, in a way that would inform the treating team so that the patient can be treated promptly, but also be able to pick up possible episodes of CRS when entering the patient’s observation readings (blood pressure, temperature and oxygen saturation).
