Hi All
Wondering if you could help.
I wanted to confirm whether one can request for archetype development for free if one does not currently exist.
Are there any costs associated with this?
Many thanks.
Eunice
Hi Eunice,
There are a variety of ways in which archetype development can be supported. Many of the archetypes currently on CKM have their origins in work supported and funded by the English NHS. There are other people and places doing development, particularly NEHTA in Australia - see http://dcm.nehta.org.au/ckm/# who I understand are funding both editorial and clinical review time.
As you will see from my other reply, this is an emerging space and it is difficult to answer your question directly without knowing more about what you are trying to do in the NHS context. By all means email me directly if you want to discuss privately. I am based in the UK and reasonably familiar with the various UK standards development efforts (for better or worse!!).
Ian
Dr Ian McNicoll
office +44 (0)1536 414 994
+44 (0)2032 392 970
fax +44 (0)1536 516317
mobile +44 (0)775 209 7859
skype ianmcnicoll
ian.mcnicoll@oceaninformatics.com
Clinical Modelling Consultant, Ocean Informatics, UK
openEHR Clinical Knowledge Editor www.openehr.org/knowledge
Honorary Senior Research Associate, CHIME, UCL
BCS Primary Health Care www.phcsg.org
Dear Ian
Thank you so much for your reply.
I was thinking whether there was a centrally funded team dedicated to developing archetypes for data standard developers. I was wondering whether if one was involved in a development work for clinical systems and notice that new archetypes are required, whether one could request for the archetype development free.
I can see this is not the way things work…
Thanks so much.
Eunice
Hi Eunice,
That is the way we think it should work and is the approach that Australia, Sweden and Brazil are investigating. The major resource requirement is a small editorial team which authors the archetypes and governs the review process but we would expecty more high-quality archetypes to be developed locally and submitted for inclusion to a shared repository as expertise develops.
Ian
Dr Ian McNicoll
office +44 (0)1536 414 994
+44 (0)2032 392 970
fax +44 (0)1536 516317
mobile +44 (0)775 209 7859
skype ianmcnicoll
ian.mcnicoll@oceaninformatics.com
Clinical Modelling Consultant, Ocean Informatics, UK
openEHR Clinical Knowledge Editor www.openehr.org/knowledge
Honorary Senior Research Associate, CHIME, UCL
BCS Primary Health Care www.phcsg.org
Dear Eunice,
For info, although NHS Data Standards & Products has worked with openEHR archetypes in the past, we are currently working on developing care record content models that use the EN/ISO 13606 reference model and ISO 21090 data types (both with a relationship to, but not exactly the same as, openEHR’s technical infrastructure), alongside a modelling approach that seeks to make as much use as possible of the SNOMED CT clinical concept hierarchy, as well as re-usable ELEMENT models and terminology constraints. Do please feel free to get in touch with me, if you’d like more information about current NHS ‘central’ activities in this area.
We also continue communications with Thomas and Ian (and others) to maintain links with the openEHR community, and hopefully will be able to provide a clearer picture of how NHS content and openEHR archetypes fit together in the coming months.
Best regards,
Laura
Thanks Laura,
That is very helpful clarification. It is unfortunate that much of the
interesting work being done in the English NHS is 'hidden away' either
with the TRUD mechanism or in the case of the Clinical Data Standards
work, behind the N3 firewall. I know steps are being taken to address
these issues but it does present a significant barrier for those
outside the NHS.
Regards,
Ian
Dr Ian McNicoll
office +44 (0)1536 414 994
+44 (0)2032 392 970
fax +44 (0)1536 516317
mobile +44 (0)775 209 7859
skype ianmcnicoll
ian.mcnicoll@oceaninformatics.com
Clinical Modelling Consultant, Ocean Informatics, UK
openEHR Clinical Knowledge Editor www.openehr.org/knowledge
Honorary Senior Research Associate, CHIME, UCL
BCS Primary Health Care www.phcsg.org
Dear Laura, Ian
Many thanks for your emails. They have been so helpful …
Laura, I am going to take up the offer of contacting you to get to know more about the ‘central activities’. I will be in touch soon.
Ian, I totally agree that most of the work done on data standards is currently been hidden away behind the N3 firewall or through trud. We need more accessible mechanisms for this work expecially for those that actually need to use these standards locally.
Hopefully this will be taken into consideration in current and future work.
Thanks again.
Best regards
Eunice
In part in (a slow!) response to the discussion below, I’m pleased to invite comments on the current draft detailed content models (based on 13606 and using the SNOMED CT concept model) for Discharge Summary, now accessible at https://svn.connectingforhealth.nhs.uk/svn/public/lra/PUB/discharge/content/index.html. (Apologies for the certificate warning that you’ll be confronted with at first.)
For some background info, this work is still relatively rough – it’s an interim draft release that shows our first attempt to publish a full suite of detailed requirements, technical models and instance examples for record content. We’re aware of a few inconsistencies and gaps in the end-to-end flow, but I’d still welcome any comments you might have time to send us … I’m hoping that we’ll release the next draft (based on comments received in the next few weeks) in November.
Best wishes,
Laura
Hi Laura
Thanks for the link. I am finding it very difficult to make head or tail of the pages and what it all means.
The pages appear to have a very basic 13606 element at the top and then a heap of references including self references.
Can you help at all?
Cheers, Sam
Hi Sam,
I come to an HTML index page that provides a brief narrative and labelled links to requirements, technical models, instances, etc. Maybe you could let me know offline what application you are using (maybe it’s a browser issue) or send me a screenshot of what you see.
Cheers,
Laura
Hi Laura,
Thanks for the link. While I can navigate most of the links, I can’t see the class diagrams. (I use google-Chrome)
Regards
Russell
Hmmm. Using Google Chrome, I can see the class diagrams...
Note that the diagrams are currently found in the 2nd link (for the requirements Information Analysis Model) and 3rd link ('Interim Graphics-Led Views' of the DS models) listed below - i.e. where I've added '<<<' at the end of lines in my copy below. The only graphics we have at the moment are auto-generated from the Enterprise Architect tool - which do include everything, but require an extra step to see, for example, the terminology constraints.
* Discharge Summary Requirements Artefacts
o LRA Discharge Summary Requirements Specification V0.4.1.1
o LRA Discharge Summary Information Analysis Model <<<
* Discharge Summary Constrained Domain Models
o Interim Graphics-Led Views <<<
o Alternative Views of the Same Models:
* Discharge Summary COMPOSITION Model
* Discharge Summary ENTRY Models
* Discharge Summary ELEMENT Models
* SNOMED CT Expression Constraints used in Discharge Summary
* Discharge Summary Instance Examples
o Discharge Summary Example SNOMED CT Instances
* For reference:
o LRA Domain Models
o LRA SNOMED CT Expression Constraints
o LRA Controlled Vocabularies
o LRA Reference Models