openEHR personas

After the conference, I have several topics to discuss during the next days. I’ll start with this one. :smiley:

I’m not really sure of the extent and opportunities offered of the openEHR personas that were created for the Collabrathon.

The profiles and medical history of seven people have been created. I’m not sure if, right now, the data is only what we see in the PDF (i.e. https://conference.openehr.org/wp-content/uploads/2024/09/Klaus-Muller-Persona-7.pdf). At least for Klaus it seemed that some information was already in openEHR format.

Starting withe these PDFs, I imagine there is still some work to do:

  • Select the archetypes to represent all their medical data
  • Create templates to represent the fictional health care processes that generated that data
  • Generate data instances
  • Publish all the previous resources openly

I don’t know if the idea is that this work is done through collabrathons or events, or if this is something that should be done by all of us, the community.

We have an opportunity to create a minimal and curated data set that would be very useful for doing demos of systems, for education purposes, for testing, etc. A very valuable resource for spreading openEHR.

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Definitely a well known ‘test’ dataset of clinically plausible personæ would be of great benefit to the community. It should be distributed in an easily-imported machine-readable form so that it’s quick to seed test systems with such data.

Yes this work was done, the records put into both Better and Vita Group and the apps were built onto of this for the patients. At this point the end points are just being used for Collaboration like activities but if a CDR vendor did want to host these records they could be used more widely. At this point openEHR itself does not have the infrastructure to host a sandbox. I would welcome help from anyone who might want to take this forward.

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Vita announced a sandbox server at a conference, that should do the trick

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