In the context of family health management, how to model a family?
Is it better to use FHIR Resource(s) or openEHR Archetype(s) to model it?
When it comes to kinship, how to take privacy into account?
A rough sketch based on the FHIR resources (Not necessarily appropriate)
Is it appropriate or necessary to use Bundle (type = “document”) and Composition resources to organize these resources?
Is this a use case where a whole family is under the care of a single healthcare provider over time, like a “family doctor” kind of situation? Or something else, like clinical genetics?
Something like that. But the provider is not a traditional healthcare one. Its business scope is not limited to traditional medical services, but also includes meals, entertainment, travel, and more. Kinda SDOH…
I see. I would probably opt to represent the relationships themselves using the demographics service, and not in the health record itself. So whether you use a demographics-enabled openEHR CDR, a FHIR demographics server, or something else for your demographics, that’s a potentially good way to go?
If going the openEHR DEMOGRAPHIC model route, a family could potentially be inferred from a certain type of relationships between persons, or an explicit ‘Family’ archetype could probably be created using the GROUP class. For example like this, but using “family” as the group designation instead of “cardiac surgery team”?