In Norway we’re currently working with all mentioned in the header. No less! At least I have nightmares about how wide this is and how much work is ahead of us, so asking you all: Have you made anything related to this recently that we can tap into, or anyone to work together with? I know the HighMed group have made some archetypes about radiation therapy and or particle/proton. And I know there are work in Christie regarding cancer treatment, especially proton, but not openEHR? You guys in Karolinska, @erik.sundvall ?
Do you know of anyone in the other DigiOne hospitals but Oslo University Hospital (Leeds, Frankfurt, San Raffaele, Maastricht, Saint Luc) who I can get in touch with?
At The Christie our first project was EPROMS (patient reported outcomes). We have only just moved on to the Big Project which is to replace the entire form estate which facilitates creation of the clinical records in the EHR.
We are a small team and I’m sure we would value any sharing no matter how small
Having just attempted to tag my colleagues it seems they haven’t yet registered here so I’ll invite them to do so asap
The Christie have just recently started using an in house Patient reported outcomes ‘system’. As to be expected it’s not perfect but the forms are openEHR/Better based.
I look forward to hearing about your experience reporting Pathology and Chemo treatments. Do you use the term SACT, systemic anti-cancer treatment, for chemo and anything not targetted, or is that just UK terminology?
Sorry for late reply, I have a back that’s not being nice to me
This project, Clinical Knowledge Manager, should be the place to share archetypes regarding cancer. At the moment is’s called Cancer reporting, but will change to Cancer archetypes, or something similar.
It’s only CTCAE, the TNM archetypes and ECOG there now. If you have an archetype or a template to share, please upload them using the “Propose New Archetype” functionality in the “Archetype” tab.
In Norway we’ll gradually make “mini-templates”, perhaps specifically for certain cancer types, to be used as embedded templates in Archetype Designer. Not sure if we’ll put them in review though. Will upload them here as soon as they’re in a more stable condition.
In Catalonia, we are following a consensus process to standardize the use of sequencing panels for specific tumor types, and based on establishing reference centers, use openEHR-based request forms and results reports for the management of a centralized registry that will soon be a reality. This initiative has been using the assets generated in the openEHR Genomics Project and we would like to continue collaborating in the future to the revision and maintenance of this project with our specific use cases.
Also in radiotherapy, we will start the modelling of data coming from proton radiotherapy devices and storing it in a common openEHR-based registry for the management of patients.
Finally, PROMs have also been developed in different areas and will soon enter the oncologic specialty.
No need to mention that we are very much open to collaborations.