Big milestone for the International CKM community

Last weekend, the International CKM community quietly passed a major milestone — over 4,000 registered users from 120 countries! :tada: This is all the more remarkable given that growth has come largely through word of mouth.

A heartfelt thank you to everyone who has contributed over the years. You are the reason our archetype library continues to be a high-quality, trusted, and globally credible digital health resource.

And thank you in advance to those who will continue shaping its future.

The archetype library is more than just a resource — it is a global public good, forming a solid foundation for transforming the digital health environment. :globe_showing_europe_africa::heart:

Kind regards

Heather

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Great news and great work from all the CPB, from all the contributors and of course, from you @heather.leslie !

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Thanks for all the work from everyone and the CPB, you guys are awesome and a pillar of this community :slight_smile:

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Congrats! That’s an impressive milestone

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This is by far the largest clinical modelling repository and community in the world, and when I show it to people here in the US they go silent. It’s 20-50 times the size of anything here, and 10x better semantically.

I thought when you got to 1000 users, that was going to be it. 4,000 is epic (the good kind).

No-one has done more than @heather.leslie to make this happen, and as the original author of the archetype formalism, I never imagined that we’d see it serve its purpose at this scale. A great milestone. This is what can happen if you hand the responsibility of modelling the domain to those who actually understand it. Heather said maybe 15 years ago that we had to have some way of getting an hour a week from clinical professionals, who have close to no spare time. So it can’t be meetings, standards WGMs or any other time-wasting modality (Heather, feel free to correct my paraphrasing here). Hence CKM. How prescient! The rest of the domain is still trying to do this kind of activity in those old ways.

As an engineer I feel we should recognise the work @sebastian.garde has quietly performed to make the CKM a real thing. This could only have been done by a world-class health informaticist who is also a world class software engineer.

The reason for silence whenever I show this to people in the US: huge community + huge model library + amazing tool. I often say to them: you wouldn’t believe how few people made this happen.

(There are of course many other luminary contributions in CKM-land, but I’m sure people will forgive me for pointing to Heather and Sebastian for now, as they have been in for the truly long haul).

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Impressive work from the Community :clap:
Much thanks for years of unsung work Drs @heather.leslie @ian.mcnicoll and the Norway National Team @siljelb @varntzen @John_Tore_Valand

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Fantastic news @heather.leslie and thanks for leading this amazing community .

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This is simply amazing. I’d like to recognise all the hard work and great people who made this possible. Not forgetting 1000s of reviewers and other contributors choosing to spare quality time. It’s also a striking example of how great tooling can make such a difference. I feel so proud to be part of this community.

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An outstanding milestone, wow. The community is building and building. congratulations.

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This is truly the core value pf openEHR. The growth in the last few years has been phenomenal! I’m just on the way home from France, which will be the next big addition to the openEHR family!
Congrats, Heather!

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Congratulations to all involved over all the years. It is a great achievement by a loosely coupled community sharing the same long term vision and goal. We believe in open and computable definition for healthcare and we know that this domain is so huge and complex that we need a crowd based global effort to achieve it.

Proud to be an openEHR-er :flexed_biceps::partying_face:

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Wonderful to see this. The power of collaboration. Well done all.

Would be great to do a blog post @Pete_Bouvier on this major milestone?

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Yes, I was thinking the same. Can we get some words - possibly even photos - from the original team? @thomas.beale @sebastian.garde @heather.leslie et al…?

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@Pete_Bouvier

Many congratulations to everyone involved – what a journey (or shall I say: rollercoaster ride) it has been so far!

Even more so, it is truly amazing to see CKM’s global reach today - spanning 120 countries worldwide. For a bit of context, the recent MedInfo conference welcomed delegates from 63 countries.
This work is laying the foundations for a digital health ecosystem, globally — tackling many challenges along the way with few resources, but a lot of commitment to get there and a strong belief that this is needed.

Back then (around 2007), one of the major challenges we faced was the lack of visibility of what openEHR has to offer.
The early openEHR specifications were available, and we had a prototype of the Archetype Editor — but that was about it.

It may sound trivial today (at least to the openEHR community), but the breakthrough was this realisation that we didn’t need to keep reinventing the wheel.
That instead, clinical models need to be developed and managed so that they can be reused and shared as widely as possible - across organisations, health systems and countries.
This is assuming they are modelled comprehensively, are of high quality and ideally reviewed by clinicians from around the world.

This realisation has driven us to focus on the problem of how to actually govern these models effectively and make them easily available and ‘clinician-friendly’ – trying to hide the technical details or present them in a way that does not require an in-depth knowledge of openEHR to understand the clinical side of the models.

Making archetypes publicly available and presenting them in a clinician-friendly way has given broader visibility to the openEHR approach as a whole and has been, I believe, a key enabler for what openEHR is today.

In all this, you cannot overestimate the contributions and support of the following persons: Dr Heather Leslie, Dr Ian McNicoll, Dr Sam Heard, Thomas Beale, Dr Rong Chen (for the Java Reference Implementation!) and Prof Evelyn Hovenga!



Finally, if you want something to laugh at for the weekend:
This is a photo I took of the very first idea for CKM as far as I remember, sketched on a whiteboard - probably taken in early 2007.
I never took such pictures, and I don’t think my mobile even had a camera at the time. But for some reason, I had a real camera with me that day - I think it was because William Goossen visited us at Austin Health in Melbourne. I must have known we were on to something that day, so I took this picture.

Anyway, you can see we came up with the idea of a CRB – I think Clinical Review Board – responsible for the overall governance.
And an Orphan Committee for orphaned archetypes in need of a home. Plus A LOT of committees, organised along professions and clinical specialities. These committees have evolved into more flexible CKM teams and later into CKM Projects and Incubators.
And you can even see a 1.0.1 Sem Ver making a first appearance at the bottom right.

For all I got wrong - at least I chose nearly the right colours for an openEHR branding…!

Now - on to the next 4000 registrants and the remaining countries! :wink:

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Thank you Sebastian for taking us down memory lane. I remember starting our work with archetypes in 2004 when we were working out how to teach clinicians to develop them! Then we realised that once developed we needed a repository. We decided it needed to be ontologically structured and hence you developed that first prototype accordingly. We persisted despite numerous setbacks. Over subsequent years we kept looking for that tipping point of acceptance and use…it’s nice to see that we’ve finally made it! Many thanks to all of you for making this vision a reality. Evelyn

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@sebastian.garde great piece of history. Thanks for sharing. Such an amazing community. Well done to all the pioneers here.

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Ahead of you…

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I couldn’t help but share a story down memory lane…Back in 2001 I was attending a conference in Berlin at the premises of Charite and while going down the elevator at the hotel, I literally bumped into Tom! After an elevator pitch (pun intended!) I was convinced this gentleman was really interesting but instead of going deep into health informatics we took a walk alongside a main boulevard and enjoyed taking a look at some fine Bentley automotives :slight_smile: I reckon later that day I watched Sam, Tom and Dipak and completely blown away with the Archetype methodology. Back in 1997/8 I attempted modelling some detailed XML based structured anatomical pathology forms using ASTM DTDs because there was no other decent structured clinical information modelling standard at that time and I loved the beauty of clinician-readability of Archetypes - thanks to the ADL. For those who remember the closest was Astrid van Ginneken’s openSDE project from Erasmus MC. It has a beautiful modelling tool and fully automated GUI generation software at that time (OpenSDE download | SourceForge.net). Both way ahead of their time - and I guess the time has finally come for the world to embrace openEHR!

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Congratulations to the founders and all the contributors over the years!!! :partying_face:

After @Sam got the project off the ground in Ocean and @sebastian.garde got to work (with a lot of useful guidance from @Evelyn_Hovenga from memory), people like me could just stand back and watch the clinical people argue about things like blood pressure body position and modelling of fundal height for pregnancy. Very satisfying. Other than @sebastian.garde (working as an engineer), CKM is pretty much all clinical + other health + health informatics people.

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