# Archetype was adopted for intractable disease surveillance

**URL:** https://discourse.openehr.org/t/archetype-was-adopted-for-intractable-disease-surveillance/14974
**Category:** Clinical (archive)
**Created:** [25 March 2010 03:00 UTC](https://discourse.openehr.org/t/archetype-was-adopted-for-intractable-disease-surveillance/14974 "2010-03-25T03:00:10Z")
**Posts on this page:** 4
**Page:** 1

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### Author: ![system](https://discourse.openehr.org/uploads/default/original/2X/f/f0a1dedb20c42747bddcafd6c7df9db5f34f003c.svg) [@system](https://discourse.openehr.org/u/system)
#### Post date: [25 March 2010 03:00 UTC](https://discourse.openehr.org/t/archetype-was-adopted-for-intractable-disease-surveillance/14974/1 "2010-03-25T03:00:10Z")

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Japan has intractable disease (so called 'nanbyo' in Japanese) surveillance  
and subsidy program. Intractable disease is defined as rare and chronically  
progressive diseases, which cause patients disability and social and  
financial burden. eg. Systemic lupus erythematosus, dermatomyositis,  
myasthenia gravis, ulcerative colitis and so on.  
To get more outcome from this program, data repository will be reconstructed  
with archetype technology. We are now modeling the clinical research forms  
and making archetypes. This is the first practical step of the openEHR in Japan.

Shinji KOBAYASHI

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### Author: ![Hugh\_Leslie1](https://discourse.openehr.org/letter_avatar_proxy/v4/letter/h/2acd7d/32.png) [@Hugh\_Leslie1](https://discourse.openehr.org/u/Hugh_Leslie1)
#### Post date: [25 March 2010 03:19 UTC](https://discourse.openehr.org/t/archetype-was-adopted-for-intractable-disease-surveillance/14974/2 "2010-03-25T03:19:06Z")

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Very exciting Shinji - well done.

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### Author: ![system](https://discourse.openehr.org/uploads/default/original/2X/f/f0a1dedb20c42747bddcafd6c7df9db5f34f003c.svg) [@system](https://discourse.openehr.org/u/system)
#### Post date: [25 March 2010 14:39 UTC](https://discourse.openehr.org/t/archetype-was-adopted-for-intractable-disease-surveillance/14974/3 "2010-03-25T14:39:37Z")

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Excellent news, Shinji!

Please share your progress with us on the list.

Cheers,  
Rong

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### Author: ![Inger\_Wejerfelt](https://discourse.openehr.org/letter_avatar_proxy/v4/letter/i/0ea827/32.png) [@Inger\_Wejerfelt](https://discourse.openehr.org/u/Inger_Wejerfelt)
#### Post date: [26 March 2010 11:13 UTC](https://discourse.openehr.org/t/archetype-was-adopted-for-intractable-disease-surveillance/14974/4 "2010-03-26T11:13:28Z")

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Very good, Shinji! Congratulations from Sweden

Best regards, Inger
